Involving experts by experience in Learning Disability Awareness Training

Early research findings on the enablers and barriers to involving experts by experience.

The National Development Team for Inclusion (NDTi) was commissioned in 2019 by the South Regional Health Education England Intellectual Disabilities programme to find and share best practice in training people who work in NHS Trusts to support people with learning disabilities. The aim is to support staff development to help them achieve better outcomes when they are working with people with learning disabilities. Further information about the project can be found here.

Early findings from the different strands of this project (surveys, hospital interviews and evidence reviews) highlighted the important role of experts by experience – self advocates and family carers – in the design and delivery of learning disability training. People who had attended training told us that the involvement of experts by experience made it more memorable and impactful for them.

This small research study was undertaken to explore the enablers and barriers to involving experts by experience. We have produced this evidence-based guidance on how self advocates and family carers can be involved well in the design and delivery of learning disability awareness training.

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Related project(s):

Intergenerational-older-lady-sofa-child
Values-led research that informs service design, amplifies lived experience, and supports inclusive practice across social care, health and education.

Related collection(s):

Resources to help make sure people who work in NHS trusts have the training they need to support people with learning disabilities.

Resource type:

Research

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Summary report - Making sure people who work in NHS trusts have the training they need to support people with learning disabilities

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Summary of a report commissioned by South Regional Health Education England Intellectual Disabilities programme to find and share best practice in training people who work in NHS trusts to support people with learning disabilities.

Ensuring that learning disability training makes a difference – what needs to happen?

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Briefing paper on what needs to happen at different levels of the system to ensure that mandatory training on learning disability is making a genuine difference.

Case Study 2: Oxfordshire Family Support Network - Working with Families workshop

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We asked the Oxfordshire Family Support Network about their 'Working with Families’ workshop.

Case Study 1: Grapevine’s Learning Disability Awareness & Health Inequalities Training

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We asked Grapevine about their learning disability awareness training course.