Change that leads to better lives

NDTi calls for urgent action following the DoH response to the Confidential Inquiry

Press Statement: NDTi calls for urgent action following the Department of Health response to the Confidential Inquiry into Premature Deaths of People with Learning Disabilities.

NDTi calls for more urgent action from the Department of Health as it publishes its responses to the Confidential Inquiry into Premature Deaths of People with Learning Disabilities (CIPOLD) today (12th July 2013).

The Norah Fry Research Centre at the University of Bristol published the report of the confidential inquiry in March 2013, highlighting the unacceptable situation in which people with learning disabilities die on average 16 years sooner than people without learning disabilities. Up to a third of the deaths of people with learning disabilities were from causes that could have been prevented with good quality healthcare. The Inquiry made 18 key recommendations.

The Department of Health agrees with many of the recommendations in the report including: the identifying people with learning disabilities in healthcare records, the principle of auditing the provision of reasonable adjustments, named health care coordinator for people with complex or multiple health needs or two or more long term conditions, and patient held health records for patients with learning disabilities who have multiple health conditions.

An All-Party Parliamentary Group will discuss the response on the 15th July with Norman Lamb, Minister of State for Care and Support at the Department of Health, and a debate will take place in the House of Lords on the 18th July. Whilst the department of Health emphasises its commitment to addressing identified in the Confidential Inquiry, there remain a lot of question marks in the actions to be taken.

Sue Turner, Programme Lead for People with Learning Disabilities at The National Development Team for Inclusion cautiously welcomed the Department of Health response to the Confidential Inquiry.
“In accepting the recommendations the Department of Health and NHS England are demonstrating their commitment to addressing the healthcare needs of people with learning disabilities; but this is not enough, urgent action is required in the short term in order that premature deaths are prevented through effective healthcare provision. The response although very welcome is somewhat weak on action”

Rob Greig, Chief Executive of NDTi (which delivers The Improving Health and Lives: Public Health Observatory for People with Learning Disabilities in partnership with the University of Lancaster), welcomed the Department of Health response but cautioned that there was a lot to be done in order to improve health and life expectancy of people with learning disabilities, saying
“although the Department have accepted may of the recommendations in the Confidential Inquiry, it is disappointing that the responses lacks any urgency in addressing many of the recommendations, when people are dying from causes that can be prevented by good quality healthcare urgent action is required. Specific time frames are needed to prevent too many people with learning disabilities dying unnecessarily for the want of quality healthcare. Many of the recommendations will require changes at local service delivery levels, support and resources from the Department of Health and central Government will be essential to ensure that local services can meet the recommendations.”

The copies of the reports are available from the related downloads on the right.

Notes to Editors:

About NDTi:
NDTi is an organisation that promotes equal and inclusive lives for people in their communities, particularly where ageing or disabilities are issues. We do this by taking action at local and national levels; advising policy makers, encouraging public debate, carrying out research & evaluation and providing change management support to local and national organisations that have the same aims.

Examples of the organisations that the NDTi is currently working with include: the Department of Health, the Department for Education, Joseph Rowntree Foundation, Comic Relief and numerous local authorities, NHS and third sector organisations across the UK.

Other examples of the recent and current NDTi work include:

  • NDTi being one of the partner organisations delivering the Learning Disability Public Health Observatory;
  • Developing good practice advice in delivering the personalisation agenda for the older people’s and mental health fields (for the DH);
  • Delivering the ‘Preparing for Adulthood' programme for the Department for Education which is about working with young people, families and local areas to support young people with SEN and disabilities achieve employment, good health, independent living and community inclusion as they move into adulthood;
  • Developing commissioning good practice guidance for the DH around services for people who challenge;
  • Two key projects for the Joseph Rowntree Foundation’s Better Life programme on promoting equality, inclusion and choice for older people with high support needs.

Contact Details

Anna Marriott
Tel: 01225 255 268

Contact Office

Bath (Registered Office)

National Development Team for Inclusion
4 Queen Street

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